More than Half a million Americans are living with polycystic kidney disease (PKD), a genetic condition that can lead to kidney failure.
SUPPORTED BY
ABOUT US
Strive Against PKD
A student-run non-profit organization
Statistics
Real Progress. Real Hope.
A BREAKTHROUGH IN TREATMENT
The FDA approved tolvaptan to slow kidney function decline in adults at risk of rapidly progressing ADPKD.
LESS KIDNEY VOLUME GROWTH
In a three-year ADPKD trial, tolvaptan reduced total kidney volume growth by about 49% compared with placebo.
SPECIALIZED CARE LOCATIONS
The PKD Foundation’s U.S. network includes 81 designated centers and clinics supporting specialized care for adults and children.
NEW RESEARCH PROJECTS
The PKD Foundation selected 12 research projects for funding in 2026, exploring disease mechanisms and potential treatments. PKD Foundation
The Story
The Backstory
The reason behind the strive? Depicted on the left is Blake, Trevor Turnbull's brother. From a very young age their family would do the annual Walk for PKD 5k. This organization did more than bring light and fundraising to the disease; it brought family together, and it created laughter and memories. Our team is a highly driven group of University of Illinois students that want to make a change in our world. This is our why.
A Strive for a better future.
A 5K covers 3.1 miles. Community races bring runners, walkers, and volunteers together around a shared cause. Taking part can be a way to raise awareness of PKD and support people affected by it.
Polycystic kidney disease is a genetic condition that causes fluid-filled cysts to grow in the kidneys. Over time, these cysts can enlarge the kidneys and reduce how well they work. Research is helping scientists understand the disease and develop better treatments.
PKD care is different for every person. Managing blood pressure and working with a kidney specialist can help protect kidney health. Some people with advanced kidney disease may eventually need dialysis or a kidney transplant.
Movement can be part of a kidney-friendly lifestyle, but there is no single activity plan for everyone with PKD. A care team can help someone choose activities that suit their health. Walking, volunteering, or cheering from the sidelines all offer ways to join the community.
KIDNEY HEALTH
Everyday steps to protect your kidneys.
PKD is inherited and cannot currently be prevented. These habits may help protect kidney health; discuss your individual needs with your care team.
Monitor blood pressure and follow your treatment plan.
Choose lower-sodium foods and a balanced eating plan.
Stay active in ways that suit your health and avoid smoking.
Ask your clinician about safe fluid intake and medicines, including over-the-counter painkillers.
Keep regular kidney checkups and discuss your family history.
